Dear Friends,

Parry-Romberg Syndrome was a proud participant of the One America 500 Festival Mini-Marathon held May 8, 2010 in downtown Indianapolis. Our 5K team braved the brisk 47 degree temperatures and 27 mph spring winds that whipped around downtown Indy. Walkers proudly wore t-shirts that sent the message of a need for AWARENESS, EARLY DIAGNOSIS, TREATMENT, EDUCATION, AND RESEARCH of Parry-Romberg Syndrome. Many thanks to those who participated. We had a wonderful time and hope that others will join us for the MINI or 5K next year on May 7.

Providing AWARENESS of PRS is a key to early diagnosis and treatment. During the month of April, Bryan McDowell provided the PRS RESOURCE, INC. brochure and INITIAL SYMPTOMS SURVEY to 85 pediatrician’s offices across the state of Indiana. If you are in need of a brochure(s) and have the time and energy to send information to medical professionals in your local area, please let us know. We will gladly supply you with these mailers and the postage. Contact Crystal at prsresource@comcast.net.

Our website continues to rank in the top 5 of the major search engines. We receive calls weekly from various locations across the United States. We remain encouraged that our mission is making a difference and that our posted research is providing answers for those in need. Whether you are newly diagnosed or seeking documented research, we encourage you to copy the TREATMENT information and take this to your physician. Because PRS is such a rare disease, the patient must take an active role in by educating the medical community.

Sincerely,

Crystal McDowell

"In the final analysis, the questions of why bad things happen to good people transmutes itself
into some very different questions, no longer asking why something happened, but asking how we will respond,
what we intend to do now that it happened."

~Harold S. Kushner~