Dear Friends,

As the seasons change and winter approaches we have enjoyed hearing from many patients about their journey with Parry-Romberg Syndrome.  We are sympathetic to patient and family concerns and try earnestly to direct each contact to the appropriate information on our website.  It’s important for our readers to realize that we are not medical professionals.  We endured our own trials with this disease and put together Parry-Romberg Syndrome Resource, Inc. as a site for others to locate comprehensive information that could guide their questions and concerns. 

Our site and organization will be undergoing several changes in the New Year, 2012.  We are relinquishing our nonprofit status in an effort to ease our load.  We will continue to provide referenced medical information as it becomes available.  Our Case History and Treatment pages receive an amazing number of views each month and those areas will continue to receive our attention as new information is brought to our attention. 

Thank-you very much for referring others to our site and for your continued support and encouragement. 

We can be contacted at prsresource@comcast.net and 317 566 8149.

Sincerely,

Crystal McDowell
Bryan McDowell