Overlapping Diseases to Parry-Romberg Syndrome
The above article was written by Sally VanRaemdonck and published in the December 2007 issue of InFocus, a newsletter for AARDA (American Autoimmune and Related Diseases Association). Many thanks to Sally and AARDA for allowing Parry-Romberg Syndrome Resource, Inc. to post this information regarding misdiagnosis and various reasons for why Parry-Romberg Syndrome may be underdiagnosed.
Scleroderma
The Scleroderma Foundation actively promotes education and awareness of scleroderma related conditions. The link provided offers a brochure on Juvenile Scleroderma and clarity of terms such as; Morphea, Linear Scleroderma, en coup de sabre, lesions, and Parry-Romberg Syndrome.
To find out more about the Scleroderma Foundation access: www.scleroderma.org.