Parry-Romberg News Reel

Medical Breakdown

Support for Parry-Romberg Syndrome

Published / by Lucille Ray
  • Johnson & Johnson Patient Assistance Foundation Inc.  Help get the PRESCRIPTIONS you need.  www.jjpaf.org.
  • The Romberg Connection is a wonderful online support organization.  Members gain insightful information through communication with other families experiencing Parry-Romberg Syndrome.  This site also offers a wealth of medical information resources.
  • The Scleroderma Foundation offers information on several camps that provide activities supporting youth with skin conditions.  Camp Discovery is supported by the American Academy of Dermatology. http://www.scleroderma.org/juvenile/juv-camps.shtm
    http://www.campdiscovery.org/
  • Prepare yourself and your child on how to cope with the facial differences that Parry-Romberg Syndrome may cause.  Dr. Thomas Lehman advises parents on how to answer sensitive questions. Read Dr. Lehman’s article>>
  • NEEDY MEDS http://www.needymeds.org/index.htm
    A comprehensive site which provides medical resources including; Disease Based Assistance, Free/Low Cost Clinics, Government Programs, Discount Drug Cards, Programs for Children
  • Beyond a Glimpse: http://www.beyondaglimpse.com/
    Beauty In Imperfection Do You See Beyond The Shape of Me?