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Support for Parry-Romberg Syndrome

• The Romberg Connection is a wonderful online support organization.  Members gain insightful information through communication with other families experiencing Parry-Romberg Syndrome.  This site also offers a wealth of medical information resources.
• Angel Faces non profit organization provides healing retreats and support for adolescent girls with facial disfigurements. A program designed for boys is being developed for the near future. 8/2008
• The Scleroderma Foundation offers information on several camps that provide activities supporting youth with skin conditions.  Camp Discovery is supported by the American Academy of Dermatology. http://www.scleroderma.org/juvenile/juv-camps.shtm
  http://www.campdiscovery.org/

 

Disclaimer: Parry-Romberg Syndrome is a complicated disease which affects each person differently. Appropriate treatments for inhibiting the disease progression and for cosmetic restoration will vary with each patient. Any medical information on the Parry-Romberg Syndrome Resource, Inc. site or domain name or link associated with this site, must NOT serve as a substitute for a consultation with a physician specializing in the area of Parry-Romberg Syndrome.